You're invited to participate in the Seizure Tracker "IT’S NOT JUST SEIZURES™" (INJS) initiative.
Seizure Tracker is following standard guidelines for developing a Core Quality of Life Issues List for people with epilepsy. Our goal is to leverage this list in providing you a way to understand the impact epilepsy has on you and your family as a whole.
WHAT IS A QUALITY-OF-LIFE CORE OUTCOME SET?
A core outcome set (COS) is an agreed-upon, standardized list of quality-of-life issues our community agrees epilepsy doctors should ask about in clinic/hospital visits when seeing a person living with epilepsy.
The current quality of life items list was developed through group discussions and past surveys with patients and care providers dealing with a broad spectrum of issues related to epilepsy. With your help, we will continue the effort to prioritize the items according to how they impact you!