As a part of the Seizure Tracker "IT’S NOT JUST SEIZURES™" (INJS) initiative, we are asking that you participate in this important set of surveys.
As a community, we know that seizures and related therapies can impact our lives in many ways.
The Seizure Tracker INJS initiative aims to better understand the full impact of epilepsy on you and your family. That knowledge will help us build tools to manage all aspects of your quality of life, not just seizures.
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Consider Sharing this Page!
The more participation we get in this effort, the more valuable the data will be in creating new tools for you to use on Seizure Tracker. Please consider sharing this page with your community or posting it on social media.
Seizure Tracker® "IT'S NOT JUST SEIZURES™" project stages:
Identify factors (other than seizures) that impact quality of life.
Prioritize these factors and understand how priorities change among different subgroups within the epilepsy population.
Make the prioritized list public so we can better understand the full impact of epilepsy on individuals and families.
Build tools to help manage epilepsy more holistically.
The current quality of life items list was developed through robust interactions with patients and care providers dealing with a broad spectrum of issues related to epilepsy. With your help, we will continue the effort to prioritize the items according to how they impact you!
Seizure Tracker® "IT’S NOT JUST SEIZURES™" community collaborator: