The Seizure Tracker "IT’S NOT JUST SEIZURES™" (INJS) initiative focuses on building tools to help manage all aspects of living with seizures.
As a community, we know that seizures and related therapies can impact our lives in many ways. Help us build tools to manage all aspects of your quality of life, not just seizures.
Seizure Tracker is following standard guidelines for developing a common list of issues or Core Outcome Set for people with living with seizures. Our goal is to leverage this list in providing you a way to understand the impact epilepsy has on you and your family as a whole.
WHAT IS A CORE OUTCOME SET?
A core outcome set (COS) is an agreed-upon, standardized list of quality-of-life issues our community agrees epilepsy doctors should ask about in clinic/hospital visits when seeing a person living with epilepsy.