There are multiple tools within the Seizure Tracker system that enable users to share their data with epilepsy researchers.
The Data Share system allows Seizure Tracker users to easily connect their data with partner databases. Our de-identified and unlinked population data exports are empowering epilepsy researchers across the globe.
Did you know...
Seizure Tracker is the largest data base of patient entered seizure activity and surrounding therapies in world (over 1.7 million events recorded). Seizure Tracker users are helping unlock the mysteries of seizure progression, how seizures present in different subgroups, clinical trial optimization, therapy efficacy, non-invasive seizure forecasting/prediction methods, etc..
Here are some research highlights:
Population exports are done through a simple researcher request process. Submitted AIMs are reviewed for user interest and patient impact. Please feel free to contact us with any questions or data requests.
Interact with the Seizure Tracker user base through our surveying system...
Use the robust Seizure Tracker surveying system to directly interact with our 28,000+ registered users. Past advocacy and industry sponsored surveys have had a relatively high response rate in a matter of days.